By Kelley Johnson, Rannveig Traustadottir, Kristjana Kristiansen, Christine M Bigby
This overseas choice of own views takes a clean examine deinstitutionalization. It addresses the major steps in the direction of deinstitutionalization as they've been skilled by means of individuals with highbrow disabilities: residing inside of overall associations, relocating out, dwelling locally and relocating directly to new different types of either institutionalization and group existence. some of the chapters are contributions from individuals with highbrow disabilities. they're in line with a lifestyles historical past strategy and provides a distinct own account of the lived reviews of institutional existence and deinstitutionalization by way of the folks who have been topic to it. The existence tale of Tom Allen (1912-1991) is interspersed during the booklet, offering a robust testimony of how associations and deinstitutionalization have affected one person over the process virtually a century. Researchers and practitioners will locate this booklet an insightful and available mirrored image on deinstitutionalization, and a resource of encouragement for bettering the lives of individuals with highbrow disabilities.
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Additional info for Deinstitutionalization And People With Intellectual Disabilities: In And Out Of Institutions
Tom worked very hard on the story the year before he died. As he grew weaker he realized he would not be able to complete it and asked the two of us to finish it for him. To make sure we had full authority to do so, he had his lawyer prepare a statement declaring that he authorized Rannveig Traustadóttir and Lisa Spina to finish his story. Tom did not live to approve the last version of his story. But before he died we had long discussions about how the story should be and he gave us instructions about what should be there, how it should be told and what should be the ‘tone’ of the story.
She assured him that she could take care of me at home. About two weeks later my dad came and took me home. I was sick and weak but somehow I understood I was going home to my mother. I thought we would never get there. It was a long ride because cars only went 35 miles per hour in those days. We did not get home ’til 1pm the next day. My father, mother, sisters, brothers, grandmother and a couple of cousins all lived in one big house and everybody was waiting for me. When we got home, my mother grabbed me out of the car, brought me into the house and cleaned me up.
Most of these years the patients were forbidden to go off the ward, except for special occasions, like if a family came for a visit. This changed a little toward the end of my years there. If we wanted to get off the ward for a while we were allowed to go down to the game room. This was our recreation. We got a deck of cards and a SIXTY YEARS IN THE INSTITUTION / 45 box of dominoes and sat around and played for about an hour and a half. There was nothing on the ward to keep us occupied. Not even a deck of cards.
Deinstitutionalization And People With Intellectual Disabilities: In And Out Of Institutions by Kelley Johnson, Rannveig Traustadottir, Kristjana Kristiansen, Christine M Bigby